Guiding principles for adult CNS tumor treatment programs

Vincent Rock; Manmeet S Ahluwalia; Matt Anthony; David Arons; Jean Arzbaecher; Erin Dunbar; Catherine Fraher; Mindy Freund; Vinai Gondi; Shanu Khanuja; Danielle Leach; Ashlee R Loughan; Al Musella; Kathy Oliver; Kendra Paabo; Vinay K Puduvalli; Geri-Dee Shaffer; Alissa A Thomas; Kimberly Wallgren; Jeffrey S Wefel; Jennifer S Yu; Gabriel Zada; Nicole Willmarth; Ralph DeVitto

doi:10.1093/noajnl/vdaf169

Guiding principles for adult CNS tumor treatment programs

Vincent Rock, Manmeet S Ahluwalia, Matt Anthony, David Arons, Jean Arzbaecher, Erin Dunbar, Catherine Fraher, Mindy Freund, Vinai Gondi, Shanu Khanuja, Danielle Leach, Ashlee R Loughan, Al Musella, Kathy Oliver, Kendra Paabo, Vinay K Puduvalli, Geri-Dee Shaffer, Alissa A Thomas, Kimberly Wallgren, Jeffrey S WefelJennifer S Yu, Gabriel Zada, Nicole Willmarth, Ralph DeVitto

Miami Cancer Institute

Research output: Contribution to journal › Review article › peer-review

Abstract

Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.

Original language	English
Pages (from-to)	vdaf169
Journal	Neuro-oncology advances
Volume	7
Issue number	1
DOIs	https://doi.org/10.1093/noajnl/vdaf169
State	Published - 2025

Access to Document

10.1093/noajnl/vdaf169

Cite this

Rock, V., Ahluwalia, M. S., Anthony, M., Arons, D., Arzbaecher, J., Dunbar, E., Fraher, C., Freund, M., Gondi, V., Khanuja, S., Leach, D., Loughan, A. R., Musella, A., Oliver, K., Paabo, K., Puduvalli, V. K., Shaffer, G.-D., Thomas, A. A., Wallgren, K., ... DeVitto, R. (2025). Guiding principles for adult CNS tumor treatment programs. Neuro-oncology advances, 7(1), vdaf169. https://doi.org/10.1093/noajnl/vdaf169

Rock, V, Ahluwalia, MS, Anthony, M, Arons, D, Arzbaecher, J, Dunbar, E, Fraher, C, Freund, M, Gondi, V, Khanuja, S, Leach, D, Loughan, AR, Musella, A, Oliver, K, Paabo, K, Puduvalli, VK, Shaffer, G-D, Thomas, AA, Wallgren, K, Wefel, JS, Yu, JS, Zada, G, Willmarth, N & DeVitto, R 2025, 'Guiding principles for adult CNS tumor treatment programs', Neuro-oncology advances, vol. 7, no. 1, pp. vdaf169. https://doi.org/10.1093/noajnl/vdaf169

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title = "Guiding principles for adult CNS tumor treatment programs",

abstract = "Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.",

author = "Vincent Rock and Ahluwalia, \{Manmeet S\} and Matt Anthony and David Arons and Jean Arzbaecher and Erin Dunbar and Catherine Fraher and Mindy Freund and Vinai Gondi and Shanu Khanuja and Danielle Leach and Loughan, \{Ashlee R\} and Al Musella and Kathy Oliver and Kendra Paabo and Puduvalli, \{Vinay K\} and Geri-Dee Shaffer and Thomas, \{Alissa A\} and Kimberly Wallgren and Wefel, \{Jeffrey S\} and Yu, \{Jennifer S\} and Gabriel Zada and Nicole Willmarth and Ralph DeVitto",

note = "{\textcopyright} The Author(s) 2025. Published by Oxford University Press, the Society for Neuro-Oncology and the European Association of Neuro-Oncology.",

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doi = "10.1093/noajnl/vdaf169",

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T1 - Guiding principles for adult CNS tumor treatment programs

AU - Rock, Vincent

AU - Ahluwalia, Manmeet S

AU - Anthony, Matt

AU - Arons, David

AU - Arzbaecher, Jean

AU - Dunbar, Erin

AU - Fraher, Catherine

AU - Freund, Mindy

AU - Gondi, Vinai

AU - Khanuja, Shanu

AU - Leach, Danielle

AU - Loughan, Ashlee R

AU - Musella, Al

AU - Oliver, Kathy

AU - Paabo, Kendra

AU - Puduvalli, Vinay K

AU - Shaffer, Geri-Dee

AU - Thomas, Alissa A

AU - Wallgren, Kimberly

AU - Wefel, Jeffrey S

AU - Yu, Jennifer S

AU - Zada, Gabriel

AU - Willmarth, Nicole

AU - DeVitto, Ralph

N1 - © The Author(s) 2025. Published by Oxford University Press, the Society for Neuro-Oncology and the European Association of Neuro-Oncology.

PY - 2025

Y1 - 2025

N2 - Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.

AB - Central nervous system (CNS) tumors require specialized care to promote better patient survival outcomes and life quality. Before this paper, there were no published guidelines identifying what constitutes specialized, comprehensive CNS tumor treatment and care in the United States. Consequently, members of several CNS tumor patient advocacy and not-for-profit organizations established a set of Guiding Principles by which adult CNS tumor treatment programs could be evaluated for the availability of specialized services offered. These Guiding Principles for CNS tumor treatment programs are the first tool of its kind in the United States. Patient advocacy and not-for-profit organizations that support the CNS tumor population can use these guiding principles to help patients and their loved ones make more informed decisions about where to seek treatment and care.

U2 - 10.1093/noajnl/vdaf169

DO - 10.1093/noajnl/vdaf169

M3 - Review article

C2 - 40980442

SN - 2632-2498

VL - 7

SP - vdaf169

JO - Neuro-oncology advances

JF - Neuro-oncology advances

IS - 1

ER -